The parts nobody else sees
ALS changes the body month by month, and you and the people close to you keep track of every change between clinic visits. Healya is built by people who know what that load feels like.
Meals can take much longer than they used to, and keeping your weight up takes planning.
An ALS clinic visit can mean seeing five or six specialists in one day.
Small changes in your grip, your walking or your voice can be hard to notice from week to week.
Your numbers already tell a story
Healya connects your weight, choking or coughing at meals, falls, sleep and what changed that day so the story is visible, to you and to your ALS clinic team.
Your weight in pounds, the average of your weigh-ins for each two-week stretch, twelve stretches in all, with the stretch when meals began taking longer marked. It held between 172 and 173 up to then, and came down every two weeks after, to 163 now, about three months later. That line is the thing to show your ALS clinic team rather than describe from memory.
Choking or coughing episodes at meals, counted each month over six months as bars and as a line, with the month you began cutting your food smaller marked. The count went from 1 a month at the start to 5 this month, and it rose every month from the third on.
How short of breath you felt lying down, scored 0 to 10 and averaged for each two-week stretch over the same twelve stretches, with your last clinic visit marked. It stayed at 1 the whole time, which is worth showing next to the weight line: your breathing lying down did not change while your weight did.
A slow change in weight, a meal that takes longer, or a fall you almost had: each one is data, and Healya can track it.
How Healya helps with ALS
A check-in that takes thirty seconds
Your weight, how meals went, any choking or coughing, falls, sleep and the medicines taken, logged in a thirty-second check-in, so the months between clinic visits sit on one timeline you and your neurologist can read.
Weight next to what changed
Each weigh-in sits next to how meals went and what changed that day, and Healya says so when a pattern shows up, so a slow drop is a line you have already seen, not a surprise on the clinic scale.
Help from family, on your terms
With a family plan, a relative can help keep your record in a profile of your own that you manage together. You choose what is shared, and the record stays yours.
A summary the whole clinic can scan
A year of weight, choking episodes, falls, sleep and medicines on one page before each visit, with the questions you flagged. A clinic day with many specialists goes further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Reports written for ALS
Three kinds, each built from your own record. A summary before every ALS clinic visit. A report on how your months are actually going. And a plain-language digest of new ALS research, on a schedule you choose.
Questions people with ALS ask us
Clear answers about what Healya does with your data, and what stays between you and your care team.
Bring your story together
Your weight, meals, choking episodes, falls and sleep in one place before your next clinic visit. Free for a week, no card required.