The parts nobody else sees
Dystonia is invisible work: muscles that pull and twist on their own, pain that follows the pulling, a treatment whose effect fades on its own schedule, and a visit where you try to remember which weeks were bad. Healya is built by people who know what that load feels like.
The pulling and twisting can get worse with stress, tiredness or holding one position for a long time.
Many people with dystonia get botulinum toxin injections every few months, and the effect fades before the next one.
If dystonia affects your neck, a light touch on your chin or cheek can ease the pulling for a moment.
Your numbers already tell a story
Healya connects your pulling score, pain score, days with tremor, sleep, your injection dates and what changed that day so the story is visible, to you and to your neurologist.
Your pulling score, 0 to 10, logged each week over twelve weeks, with your August 18 injection marked. It came down from 6 to 2 by the second week after the injection, sat at 2 for three weeks, then climbed every week from the fifth week to 7, where it has been for two weeks, which is the thing to show your neurologist rather than describe from memory.
Your neck pain score, 0 to 10, logged each week over the same twelve weeks, with your August 18 injection marked. It came down from 5 to 1 by the fourth week after the injection and climbed back to 5 now, on the same weeks your pulling score climbed.
Weeks from each injection until your pulling score first reached 5, one bar per twelve-week cycle over eight cycles, as bars and as a line, with the cycle your new commute began marked. The first five cycles held 10 or 11 weeks; the three from there held 9, then 8, then 7, which is the question for the next visit.
A first injection, years of them, or a cycle that seems to end early: your pulling score is data, and Healya can track it.
How Healya helps with dystonia
The score you give the pulling, kept for you
A thirty-second check-in, good week or bad, with your pulling score, pain, any tremor, sleep and the medicines taken, so the weeks between injections sit on one timeline you and your neurologist can read instead of a memory of the worst one.
Each injection next to how long it held
Your injection dates, logged next to the scores that follow them, so the number of weeks each one held is a line across cycles rather than a feeling, and the question of whether the effect is fading sooner has a record behind it.
Scores next to what might explain them
Long hours in one position, stress, short nights and what changed that day, logged next to each score, so a cause stays a question until the record answers it, and you and your neurologist can read it together.
A summary your neurologist can scan
A year of pulling scores, pain scores, tremor days, sleep and your injection dates on one page, with the questions worth asking. Fifteen-minute visits go further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Reports written for dystonia
Three kinds, each built from your own record. A summary before every neurology visit. A report on how your months are actually going. And a plain-language digest of new dystonia research, on a schedule you choose.
Questions people with dystonia ask us
Clear answers about what Healya does with your data, and what stays between you and your care team.
Bring your story together
Your pulling score, pain, tremor days and sleep in one place before your next appointment. Free for a week, no card required.