The parts nobody else sees
Ehlers-Danlos syndrome is a daily load: joints that slip out of place during ordinary tasks, the pain and fatigue that come with them, and often years of being told you are just flexible. Healya is built by people who know what that load feels like.
A joint can slip partly out of place while you reach for a shelf or turn over in bed.
Many people wait years for a diagnosis while doctors treat each sprain as a separate injury.
Fatigue and poor sleep are common, even in weeks when your joints feel stable.
Your numbers already tell a story
Healya connects your subluxations, pain score, fatigue, sleep, dizziness and what your watch sees so the story is visible, to you and to your rheumatologist.
Subluxations you logged each month over a year, with the month your physical therapy visits ended marked. One or two a month through July, then 4 in August, 5 in September and 7 in October.
Your average pain score, 0 to 10, each month over a year, with the month your physical therapy visits ended marked. It sat at 3 or 4 through July, rose to 5 in August and September, and reached 6 in October.
Your average fatigue score, 0 to 10, each month from March to October, as bars and as a line, with the month of your last visit with Dr. Galloway marked. It swung between 4 and 7 across the eight months with no clear direction and is 5 in October.
Years of sprains before anyone said hypermobility, newly diagnosed and starting physical therapy, or years in and watching which joints slip: your joints and your pain are data, and Healya can track them.
How Healya helps with Ehlers-Danlos syndrome
A record that counts every subluxation
A thirty-second check-in logs which joint slipped, what you were doing and how much it hurt, so the month's subluxations sit on one timeline you and your rheumatologist can read instead of a memory of the worst week.
Pain and fatigue next to what came before
Pain score, fatigue, sleep, the physical therapy exercises you did and what changed that day, logged side by side, so a pattern stays a question until the record shows it.
Dizziness and heart rate on the same timeline
Log dizziness when you stand up, and add heart rate and steps from your watch when one is connected, so the symptoms that come with your joints sit on the same record. No wearable is required.
A summary your rheumatologist can scan
A year of subluxations, pain scores, fatigue, sleep, medicines and any emergency room visits for a dislocation on one page, with the questions worth asking. Short visits go further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Reports written for Ehlers-Danlos syndrome
Three kinds, each built from your own record. A summary before every rheumatology visit. A report on how your joints and your energy are actually doing. And a plain-language digest of new EDS research, on a schedule you choose.
Questions people with Ehlers-Danlos syndrome ask us
Clear answers about what Healya does with your data, and what stays between you and your care team.
Bring your story together
Your subluxations, pain score, fatigue and sleep in one place before your next appointment. Free for a week, no card required.