Hemophilia is invisible work: a joint that tells you something is wrong before anyone else can see it, a treatment plan every new doctor has to be told about, and a treatment center that sees you a few times a year. Healya is built by people who know what that load feels like.
A bleed into a joint can start with nothing more than a feeling of warmth or tightness.
If your treatment runs on a schedule, a late dose means less protection until the next one.
The treatment center asks how many bleeds you had since the last visit, and most people count from memory.
Healya connects your factor levels, your dose log, your bleeds, joint pain and what your watch sees so the story is visible, to you and to your hematologist.
Your factor VIII trough level at each of the last eight draws, three months apart, with the draw you switched to twice-a-week factor marked. From the switch on, five draws in a row held at 4 or 5; the draw on Oct 21 came back at 1, below the floor of 3 your care team set for you.
Bleeds you logged each month over twelve months, with the month you started the early shift marked. One bleed in the ten months through August, then one in September and two in October, all three in an ankle.
Infusions you logged each month over eight months, as bars and as a line, with the month you started the early shift marked. Eight or nine a month through July, seven in August, then six in each of September and October.
Diagnosed as a baby, two years into a new product, or thirty years in and tired of counting bleeds from memory: your doses and bleeds are data, and Healya can keep the story.
A thirty-second check-in of doses taken, bleeds, joint pain and what changed that day, so a change that builds over a few months is visible to you and your hematologist instead of lost between treatment center visits.
Your factor trough level, hemoglobin, ferritin, the liver check and the inhibitor test that come with a treatment center visit: what each one measures in plain words, which way it moved since last time, and what is worth asking about at the next visit.
Doses, bleeds, joint pain, sleep, steps from your watch and what changed that day, side by side, so a bleed sits next to the days since your last dose and the week around it.
A year of factor levels, every dose, every bleed, medications and any hospital stays on one page, with the questions worth asking. Short visits go further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Three kinds, each built from your own record. A summary before every treatment center visit. A report on how your doses and bleeds are actually moving. And a plain-language digest of new hemophilia research, on a schedule you choose.
Clear answers about what Healya does with your data, and what stays between you and your care team.
Your factor levels, doses, bleeds and joint pain in one place before your next appointment. Free for a week, no card required.