The parts nobody else sees
Muscular dystrophy is slow work nobody else sees: strength you measure against last year's, a fall you have to decide whether to mention, and a visit where you try to remember which months were bad. Healya is built by people who know what that load feels like.
Muscle weakness gets worse slowly, so it is hard to tell a bad month from real change.
A fall can happen on a flat floor, and getting up again can take help.
Many people with muscular dystrophy also have their heart and breathing checked, because those muscles weaken too.
Your numbers already tell a story
Healya connects your falls, fatigue score, weight, sleep, stretching, your medicines and what changed that day so the story is visible, to you and to your neuromuscular neurologist.
Your falls each month over a year, with the month your physical therapy visits ended marked. They sat at none or one a month for the eight months before it, then climbed every month from there: 1 in July, then 2, then 3, then 4 this month, which is the thing to show your neuromuscular neurologist rather than explain from memory.
Your fatigue score, 0 to 10, averaged each month over the same twelve months, with the month your physical therapy visits ended marked. It sat between 3 and 4 for eight months, then climbed from 4 the month the visits ended to 5, then 5, then 6 this month, on the same months your falls climbed.
Your weight each month over eight months as bars and as a line, with your last visit with Dr. Anand marked. It stayed between 131 and 132 the whole time, which is worth showing: the falls climbed on a steady weight, not on lost pounds.
Still walking, using a wheelchair part or all of the time, or on breathing support at night: your strength, breathing and fatigue are data, and Healya can track them.
How Healya helps with muscular dystrophy
A record that counts the falls for you
A thirty-second check-in, fall or not, with your fatigue score, sleep, weight and the medicines taken, so the month's falls sit on one timeline you and your neurologist can read instead of a memory of the worst one.
Falls next to what came before them
Fatigue, sleep, stretching done or skipped, a change in your routine and what changed that day, logged next to each fall, so a cause stays a question until the record answers it, and you and your neurologist can read it together.
A message drafted when you do not want to wait
When a climb in falls is worth more than the wait until the next visit, Healya drafts a message to your neurologist's office with the months behind it, for you to send. It never sends anything on its own. Results from the clinic arrive through your patient portal, such as MyChart, onto the same timeline.
A summary your neurologist can scan
A year of falls, fatigue scores, weight, sleep and your medicines on one page, with the questions worth asking. Visits that come twice a year go further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Reports written for muscular dystrophy
Three kinds, each built from your own record. A summary before every neuromuscular visit. A report on how your months are actually going. And a plain-language digest of new muscular dystrophy research, on a schedule you choose.
Questions people with muscular dystrophy ask us
Clear answers about what Healya does with your data, and what stays between you and your care team.
Bring your story together
Your falls, fatigue score, weight and sleep in one place before your next appointment. Free for a week, no card required.