The parts nobody else sees
Thalassemia is invisible work: a hemoglobin that runs low, transfusions for many on a calendar that runs the year, a ferritin that climbs with every unit, and a daily medicine to take the iron back out. Healya is built by people who know what that load feels like.
Your hemoglobin runs lower than most people's, so you can tire sooner than other people and need longer to recover.
Every unit of blood brings iron your body cannot get rid of, so your ferritin is checked often.
If you get regular transfusions, each one takes several hours, and you plan the rest of the week around it.
Your numbers already tell a story
Healya connects your hemoglobin, your ferritin, your transfusion days, your medicine log, your tired days and what your watch sees so the story is visible, to you and to your hematologist.
Your ferritin (stored iron) at your last sixteen draws, about a year, with the draw where your transfusions moved to every three weeks marked. It held between 870 and 960 at the seven draws up to that one, as it had for two years, then climbed at every draw since, to 1940 on Oct 22.
Your hemoglobin before each transfusion at the same sixteen draws, with the draw where your transfusions moved to every three weeks marked. It slid from 9.8 to 8.6 over the winter, down to that draw, came back up at the next one, and has sat between 9.4 and 9.7 at the eight draws since.
Tired days you logged in each of the last eight months, as bars and as a line, with the month your transfusions moved to every three weeks marked. Fourteen in the month before the change, twelve in that month, then nine, seven, six, five, five and four.
Transfused since childhood, newly on an iron medicine, or living with a milder form and watching your counts: your numbers are data, and Healya can keep the story.
How Healya helps with thalassemia
A record that catches ferritin on the move
A ferritin that climbs a little at every draw is easy to miss one portal result at a time. Healya puts each draw on one line next to your transfusion days and the medicine you logged, so a climb that builds over a season is visible to you and your hematologist instead of lost between visits.
Labs explained in plain words
Your hemoglobin before each transfusion, your ferritin, and the ALT and creatinine drawn to watch your liver and kidneys on iron medicine: what each one measures in plain words, which way it moved since last time, and what is worth asking about at the next visit.
Check-ins that pair the numbers with the day
Transfusion days, the medicine you took, energy, sleep, steps from your watch and what changed that day, side by side, so a run of tired days sits next to the draw before it and the transfusion after it.
A summary your hematologist can scan
A year of hemoglobin and ferritin results, transfusion days, medications, iron MRI results and any hospital stays on one page, with the questions worth asking. Fifteen-minute visits go further when the story is already organized.
No wearable required. A thirty-second daily check-in is enough.
Reports written for thalassemia
Three kinds, each built from your own record. A summary before every hematology visit. A report on how your hemoglobin and ferritin are actually moving. And a plain-language digest of new thalassemia research, on a schedule you choose.
Questions people with thalassemia ask us
Clear answers about what Healya does with your data, and what stays between you and your care team.
Bring your story together
Your hemoglobin, ferritin, transfusion days and medicines in one place before your next appointment. Free for a week, no card required.